Quality of Life for young adults with intellectual disability following individualised support: Individual and family responses

Background 

In this study we evaluated the long-term impact of a project in which families were individually supported in the realisation of personal future plans in the city of Almere, the Netherlands (2004–2006).

Method 

We used fourth-generation evaluation principles. Data collection consisted of semistructured interviews with family members and adults with intellectual disability as well as focus groups with both groups. Photovoice was used as a strategy to engage 4 young adults with Down syndrome in the research. The results of the photovoice were presented to the community at a town hall meeting. The data were coded and common themes were created.

Results 

The majority of the participants evaluated the project as having a positive impact on their quality of life.

Conclusions 

The results of the study support individual future planning for young adults with intellectual disability and their families in the transition to adulthood.

Auteur(s):
Lieke van Heumen and Alice Schippers
Uitgever:

Taylor & Francis online

Publicatiejaar:
2016
Soort publicatie:
artikel
Gepubliceerd in:

Journal of Intellectual and Developmental Disability, 2016, 41 (4): 299-310.

DOI:
10.3109/13668250.2016.1213797
Bestellen:

De full text is te bestellen via de website van Taylor & Francis Online.