In the last years, interest for siblings of children with intellectual and developmental disabilities (IDD) has growing up. Despite this, there is a lack of studies regarding their quality of life. The aim of the present research is to study brothers and sisters’ perceptions about their quality of life. Twenty siblings aged between 6 and 12 years old living in Catalonia are recruited. Research is conducted through semi-structured interviews and discussion groups. Thematic analysis will be used to analyze data collected aided by Atlas.Ti programme. Results will be useful to know more about siblings’ quality of life perceptions and to detect if they have specific needs of support that could be tackled by different agents (family, school, institutions…) This ongoing research is part of a doctoral thesis supervised by Alice Schippers and Climent Giné and is funded by the Faculty of Psychology Blanquerna, Ramon Llull University, Barcelona, Spain.
Onderzoekslijn(en)(Family) Quality of Life
Olga Múries Cantan
This ongoing research is part of a doctoral thesis supervised by Alice Schippers (DSiN) and Climent Giné and is funded by the Faculty of Psychology Blanquerna, Ramon Llull University, Barcelona, Spain.
Participatie van ervaringsdeskundigen
Siblings have an important role throughout the research. Their willingness to take part on the research is assured from their very own position.
Interview’s questions are shared to the participants at the beginning of the interviews in order to give them the opportunity to add, skip or talk first about topics of their preference. That's why the interview's structure is an alive document constantly enriched by the contribution of participants.
In the final interview’ session, siblings are asked to give an advice from their point of view to different groups of people (parents, peers, teachers...) to improve their quality of life. Furthermore, together with the researcher, they develop a feedback form of the sessions to be shown afterwards to their parents.
Olga Múries Cantan