Samenvatting
Background
Research has shown that Sibling Quality of Life (SQoL) is influenced when a family member has Profound Intellectual and Multiple Disability (PIMD). Previous research stated that it is hard for siblings to find joint activities with their brother/sister with PMID. A possible activity mentioned in previous research was musical behaviour. The positive effects of music on social bonding have already been acknowledged, but have never been a main topic in SQoL research.
Objective
The objective of this research was to explore the role of musical behaviour as joint activity for siblings of children with PIMD. These insights could contribute to developing activities for siblings to enjoy with their brother or sister in order to influence the SQoL.
Methods
In this study, six children aged three to nineteen were included. The group of siblings consisted of two boys and four girls. Firstly, three of the respondents visited a concert organized for families of children with PIMD. Here, non-participative observations, based on the sibling interaction scale, took place. After the concert, the three respondents participated in a focus group. With two of these respondents and three new respondents, participatory observations and semi-structured interviews by use of Photo Voice took place. Analysis of the qualitative results lead to four themes.
Results
Musical behaviour as a joint activity plays a role in the SQoL in four different ways. First, it is considered a fun activity; second, it is considered a functional tool; third, it is considered an ageless activity and fourth it offers new posibilities for outdoor family activities.
Conclusion
The results of this research shed a new light on SQoL - namely through the perceptions of siblings instead of primary caregivers – and can be used as a format to conduct further research regarding the possibilities of musical behaviour in improving the SQoL.
Doelstelling
The objective of this research was to explore the role of musical behaviour as joint activity for siblings of children with PIMD. These insights could contribute to developing activities for siblings to enjoy with their brother or sister in order to influence the SQoL.
Methode
In this study, six children aged three to nineteen were included. The group of siblings consisted of two boys and four girls. Firstly, three of the respondents visited a concert organized for families of children with PIMD. Here, non-participative observations, based on the sibling interaction scale, took place. After the concert, the three respondents participated in a focus group. With two of these respondents and three new respondents, participatory observations and semi-structured interviews by use of Photo Voice took place. Analysis of the qualitative results lead to four themes.
Resultaten
Musical behaviour as a joint activity plays a role in the SQoL in four different ways. First, it is considered a fun activity; second, it is considered a functional tool; third, it is considered an ageless activity and fourth it offers new posibilities for outdoor family activities.
Projectinformatie
Thesis as part of the master 'Health Sciences; Prevention & Public Health' at VU University, Amsterdam.
Submission date: 31th of august, 2019
Personen
Noëlle van den Heuvel
Supervisor: Alice Schippers
Contact
Noëlle van den Heuvel
E-mail: n.vd.heuvel@nki.nl