Musical behaviour and Sibling Quality of Life Exploring the role of Musical Behaviour as a Joint Activity for Siblings of Children with Profound Intellectual and Multiple Disabilities

Summary

Summary

Background

Research has shown that Sibling Quality of Life (SQoL) is influenced when a family member has Profound Intellectual and Multiple Disability (PIMD). Previous research stated that it is hard for siblings to find joint activities with their brother/sister with PMID. A possible activity mentioned in previous research was musical behaviour. The positive effects of music on social bonding have already been acknowledged, but have never been a main topic in SQoL research.

Objective

The objective of this research was to explore the role of musical behaviour as joint activity for siblings of children with PIMD. These insights could contribute to developing activities for siblings to enjoy with their brother or sister in order to influence the SQoL.

Methods

In this study, six children aged three to nineteen were included. The group of siblings consisted of two boys and four girls. Firstly, three of the respondents visited a concert organized for families of children with PIMD. Here, non-participative observations, based on the sibling interaction scale, took place. After the concert, the three respondents participated in a focus group. With two of these respondents and three new respondents, participatory observations and semi-structured interviews by use of Photo Voice took place. Analysis of the qualitative results lead to four themes.

Results 

Musical behaviour as a joint activity plays a role in the SQoL in four different ways. First, it is considered a fun activity; second, it is considered a functional tool; third, it is considered an ageless activity and fourth it offers new posibilities for outdoor family activities.

Conclusion 

The results of this research shed a new light on SQoL - namely through the perceptions of siblings instead of primary caregivers – and can be used as a format to conduct further research regarding the possibilities of musical behaviour in improving the SQoL.

Objective

Aim

The objective of this research was to explore the role of musical behaviour as joint activity for siblings of children with PIMD. These insights could contribute to developing activities for siblings to enjoy with their brother or sister in order to influence the SQoL.

Method

Method

In this study, six children aged three to nineteen were included. The group of siblings consisted of two boys and four girls. Firstly, three of the respondents visited a concert organized for families of children with PIMD. Here, non-participative observations, based on the sibling interaction scale, took place. After the concert, the three respondents participated in a focus group. With two of these respondents and three new respondents, participatory observations and semi-structured interviews by use of Photo Voice took place. Analysis of the qualitative results lead to four themes.

Results

Results

Musical behaviour as a joint activity plays a role in the SQoL in four different ways. First, it is considered a fun activity; second, it is considered a functional tool; third, it is considered an ageless activity and fourth it offers new posibilities for outdoor family activities.

Project information

Project information

Thesis as part of the master 'Health Sciences; Prevention & Public Health' at VU University, Amsterdam.

Submission date: 31th of august, 2019

Research line

(Family) Quality of Life

Status

Afgerond

Year completed

2019
People

Researchers / project members

Noëlle van den Heuvel

People or organisations involved in the project

Supervisor: Alice Schippers

Contact

Contact

Noëlle van den Heuvel
E-mail: n.vd.heuvel@nki.nl

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