Family-based approach of disability management advances family quality of life

Submitted by Moges Wubie on Mon, 18/05/2020 - 15:00

As I get an opportunity to write this blog, I want to start by writing a proverb which called as “Health is a hidden treasure; only the sick know its value!” On my reference, it is a Nigerian proverb which I always infer when I come up to talk about health. I have gotten the chance to conduct research with some Dutch researchers on disability management caused by leprosy, podoconiosis, and lymphatic filariasis using the family-based approach.

Lees de vorige blog: Out on the street

Lees de volgende blog: Lastige drijfveren?

Out on the street

Submitted by Dick Houtzager on Mon, 18/05/2020 - 12:56

One behind the other, the couple walks along the street, both holding white canes. "If that edge is no longer there, you have to pay attention," the man warns, as his cane slides over the grass next to the newly constructed pavement. "I don't understand why they didn't finish that edge," the woman says. A little later, when crossing a road, the man explains: "I have to pay attention on the other side, because there is a lamp-post in the middle of the pedestrian crossing." He makes his way around the post and turns right on the pavement.


The OtherAbilities festival in Amsterdam

Submitted by Eva Fotiadi on Sat, 31/08/2019 - 21:02

The OtherAbilities is a series of public and semi-public events that have started in Amsterdam in March 2019. So far we have organized a three-day festival, a workshop for creating new music instruments and two public presentations of prototype instruments produced by individuals involved in the workshop as participants or advisors. The various events bring together projects of art, music, design, science and technology that explore and experiment with the diversity of the human body’s physical and sensory abilities.


Making space for disabled people in political life

Submitted by Mitzi Waltz on Tue, 09/07/2019 - 13:08

In 2018 and 2019, I was asked to have a closer look at where the people with disabilities were in political life on behalf of Disability Studies in Nederland and the Dutch Ministry of Internal Affairs (Ministerie van Binnenlandse Zaken). Some of the answers I found were surprising, others were not—but I think that they do show a clear way forward, which is a good outcome.


Little big voices

Submitted by Olga Múries Cantán on Wed, 20/02/2019 - 15:57

Around six years ago I had the opportunity to support a girl with an intellectual disability (ID) at her home. We used to do some domestic activities and went swimming afterwards twice a week. She enjoyed a lot being in the water and I enjoyed sharing with her those joyful moments. I used to talk with her mother about some concerns and challenges she was facing together with her family because of her daughter’s disability. We talked also about positive and motivating issues related with the development and achievements of the ‘swimmer’. But I started to be curious about what the siblings think, feel or experience because of their family situation. For me, that was the starting point of an exciting and sometimes overwhelming journey that has led me to the Netherlands for the second time in four years.

Lees de vorige blog: Mind the gap!

Lees de volgende blog: Iemand de ogen openen

Migrant Mental Health; beyond the medicine chest and the couch

Submitted by Ikenna Ebuenyi on Fri, 21/12/2018 - 19:15

‘’No, I cannot go to their hospital, they say I am mad, but I know I am ok. My problem is not having a job or money to take care of my family. The pain is too much and I cannot go back home now. I am afraid their medicines would make me to forget myself or complete the circle of madness.’’

Migration is as old as man and in spite of its many challenges, man has continued to move from ‘present to future dangers’.

Lees de vorige blog: A dive into the unknown

Lees de volgende blog: Mind the gap!

A dive into the unknown

Submitted by Bianca Prins on Fri, 23/11/2018 - 13:59

An orange lion is standing by the side of a pool. He knows how to swim, but doesn’t know the rules of this pool. He’s nervous, but gets ready to make the dive into the unknown water… Accessibility for banks is a bit like jumping into an unknown swimming pool. It’s a new territory in business. You don’t know the rules And you don’t know how deep the impact will be. And just like a swimming pool, you don’t know the depth of the water without warning signs.


What makes good quality of life?

Submitted by Ivan Brown on Thu, 12/04/2018 - 11:55

When I was a young boy, I sometimes heard people say: “You only have one life, so you might as well enjoy it!” To my young ears and mind, I thought this must mean that I was quite justified in having fun, fun, fun all day long. But even at the time, I realized that this was not possible. Life has rules that you do not always enjoy obeying. Life involves obligations and responsibilities that are not always fun to carry out. This seemed like a contradiction to my young mind. But, I began to realize as the years went by, that the more serious things in life can be good too, and that a person needs not only to have fun and enjoy oneself but also to engage in more serious activities that are based on personal values and goals and that bring satisfaction and fulfillment to your life.

Lees de vorige blog: Rollende moeders

Lees de volgende blog: Wat kun je niet? En wat kun je daardoor beter?

What surprised you the most?

Submitted by Lieke van Heumen on Mon, 31/10/2016 - 12:33

“What surprised you the most?”

It was this simple question about my observations as a disability studies researcher that moved me. It made me reflect on my experiences as a qualitative researcher with people labeled intellectually disabled.